SEX & GENDER IN BIOMEDICAL RESEARCH

A Thémis x Institut Pasteur Initiative

Assessing the impact of sex and gender in clinical research

IMMUNE addresses a critical blind spot in biomedical research: the systematic under-integration of sex and gender variables in clinical immunology, despite clear scientific evidence of their impact on health outcomes.

Why This Matters

50%+

of the population are women

↑↓

Sex influences immune response

Rx

Treatment efficacy varies

Adverse events differ

Yet these variables remain inconsistently integrated in clinical research and regulation – resulting in avoidable health inequities.

IMMUNE exists to move from evidence to action.

What IMMUNE Delivers

  • A shared, evidence-based state of the art
  • Identification of scientific, regulatory, and ethical bottlenecks
  • Two structuring questions that unlock system-level change
  • A co-authored white paper validated by an independent scientific & ethical committee
  • Operational recommendations for researchers, regulators, and funders

Roadmap – Phase 1

1. Stakeholder Mapping & Alignment (Jan-Feb)

Objectives

  • Identify 20-25 key stakeholders across the research-to-policy continuum
  • Align partnerships on scientific & policy ambition
  • Establish shared language and scope

Deliverables

  • Validated stakeholder map
  • Scientific and policy framing note
  • Shared state of the art bibliography

2. Online Framing Session (May)

2 hour online meeting

Objectives

  • Present state of the art on sex and gender in immunology
  • Identify scientific, regulatory, and ethical bottlenecks
  • Prioritise 2-3 workstreams

Deliverables

  • Synthesis of identified barriers
  • Validated workstreams
  • Formation of interdisciplinary working groups

3. Deep Dive & Pre-Lab Exercise (May)

Objectives

  • Deep dive into each work-stream: scientific, regulatory, ethical
  • Targeted expert hearings
  • Integration of patient and citizen perspectives

Deliverables

  • Briefs sent in advance
  • Preliminary recommendations

4. In-Person Citizen Lab (early June)

1.5 days in Brussles

Objectives

  • Consolidated presentation of state and barriers
  • Small group work on core questions
  • Development of transformation scenarios

Deliverables

  • Key recommendations
  • White paper production agreement
  • Launch moment identification

  • Leadership: Themis × Institut Pasteur
  • Validation: Scientific & Ethical Committee
  • Regulators: EMA & national agencies as active contributors

→ Structured, non-symbolic integration

→ Qualitative inputs collected via partner organizations

→ Lived experience interrogates frameworks, not illustrates

Target Stakeholders

Roadmap – Phase 2

July – Nov 2026

White Paper Writing

External Scientific Review + Immune Data Infrastructure

Unveiling of IMMUNE results at major scientific conference

Final drafting of White Paper

December 2026

White Paper launch – Brussels/Paris event

Distribution to DG Health, EMA, UNFPA, among other actors

Roadmap – Phase 3

Jan – March 2027

White Paper EU institutional tour – DG Health, European Parliament, WHO, EMA

April – June 2027

Integration into public funding criteria (Horizon Europe, ANR, etc)

Researcher training

July – Sept 2027

Impact assessment

Identification of next phase

New partnerships

Oct – Dec 2027

IMMUNE International Conference

2027 Impact Report

Phase 3/4 fundraising launch

Key Outputs & Milestones

Concrete Outputs

  • Validated state of the art on sex & gender in immunology
  • Mapping of scientific, regulatory, ethical bottlenecks
  • Two documented structuring questions
  • Co-authored white paper
  • Recommendations for research teams, sponsors, regulators, funders

Expected Outcomes

  • Alignment between science, regulation, and lived experience
  • Reference framework for future clinical trials
  • Credible evidence base for EU policy dialogue
  • Themis positioned as structuring actor in women’s health research

Milestones

  1. White paper validated by Scientific & Ethical Committee
  2. Launch at major scientific congress or EU forum
  3. Targeted dissemination to policymakers

Funding & Imapct

IMMUNE continues to need financial support to guarantee the creation and launch of the White Papers, as well as the presentation of the results and their dissemination within regional institutions. If you would like to contribute to funding this new infrastructure for women’s health, please reach out to immune@themis.eu.

TAX DEDUCTIBILITY

Fondation Roi Baudouin

Thémis operates under the aegis of the Fondation Roi Baudouin. Donations are tax-deductible in Belgium, Luxembourg, and Denmark.

In France: 66% tax deduction (up to 20% of taxable income)

By supporting IMMUNE, funders are not financing a report. They are helping build the infrastructure that makes women’s health research more rigorous, equitable, and future-ready.

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